NIH invite to #LCSM: join NIH tweetchat on Precision Medicine Initiative 6/30 1pm ET using #PMINetwork hashtag

Tomorrow, June 30, at 1:00 pm ET, the National Institutes of Health (NIH) will host an hour-long Precision Medicine Initiative chat on Twitter using the hashtag #PMINetwork.  Participants will include NIH Institutes like the National Cancer Institute (see the NCI’s social media events page), advocacy groups like LUNGevity (@Lungevity), and anyone interested in learning more about the Precision Medicine Initiative. During the chat, the NCI invites members of the #LCSM community to ask questions about lung-specific NCI precision medicine initiatives such as Lung-MAP, ALCHEMIST, and NCI-MATCH.  When you tweet your Precision Medicine questions,… Read More

#LCSM Chat topic 5/21: Living with and Beyond Lung Cancer

Lung cancer patient advocates are beginning to make their voices heard and gain acceptance in the medical world.  For the first time ever, patient advocates will be speaking from the stage at the World Conference on Lung Cancer (WCLC), the largest meeting dedicated to lung cancer anywhere.  The meeting, which runs September 6-9 in Denver and is sponsored by the International Association for the Study of Lung Cancer (IASLC), will have sessions on research, treatment, biotech developments…and patient advocacy topics. In the session titled “Advocacy in Practice,” #LCSM Comoderator Janet Freeman-Daily will… Read More

#LCSM Chat Topic 1/15 at 8PM ET: “Should the FDA Regulate Which Cancer Tests You Can Have?”

The US Food and Drug Administration (FDA) announced its intention to regulate laboratory developed tests.  Under the FDA’s proposed Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs) — which treats LDTs as medical devices and healthcare providers as manufacturers — laboratories would have to submit applications for expensive premarket review for thousands of LDTs if they wish to continue offering them to patients.  This could limit access to life-saving genomic testing for patients who have cancer and other conditions treatable with targeted drugs. This Thursday, January 15, 2015, at 8 PM… Read More