Voices Silenced by Lung Cancer

The bloggers in this list bravely shared their lung cancer stories. Although their voices have now been silenced by the disease, their words still offer valuable insights into living with lung cancer. We thanks them for generously allowing us into their world, and hold them in our hearts.

Blogger Name Blog Site Blogger’s Diagnosis Twitter Handle
Lyn Barrington living with… Stage IV NSCLC EGFR+
dx January 2011
@justlynb
Craig Blower Get Fuzzy!
Sample: “Finding NED Devine”
Stage IV NSCLC EGFR+
dx February 2013 at age 60
@Getfuzzies
Dirk Bosgraf Battling Cancer
Sample: “Cancer by the Numbers”
Stage IV NSCLC RET+
dx July 2014 at age 39
Edgar Dinkelaar Eddie’s Rollercoaster (Blogs in Dutch) Stage IV NSCLC ROS1+
dx May 2014 at age 33
@ Eddydinky
Elizabeth Dessureault From Lizzie’s Lungs Stage IV NSCLC ROS1+
dx April 2015 at age 26
 @lizzieslungs
Jennifer Glass At the Top of My Lungs
Sample: “I Seem to Have Cancer Today”
YouTube Videos
Stage IIIB NSCLC EGFR+
dx January 2013 at age 49
@JenGlassTweet
Stuart Grief Grief Stew
Stage IV NSCLC ROS1+
dx October 2014 at age 53
Emily Hsiung
(on behalf of Burton)
ros1positive Stage IV NSCLC ROS1+
dx July 2011 at age 23
Paul Kalanithi Paul Kalanithi, MD Stage IV NSCLC EGFR+
dx 2013 at age 36
Zoe Keating
(on behalf of Jeff)
Zoe Keating
Sample: “As if this isn’t hard enough”
Stage IV NSCLC
dx May 2014
@zoecello
Sheila Kennett
(on behalf of Chip)
Team Kennett Stage IV NSCLC ALK+
dx October 2012 at age 31
Cara M. Mets SUCK!
Sample: “Move over, Movember”
Stage IV NSCLC ALK+
dx August 2013 at age 34
@GirlAboutCLE
Oren Miller A Blogger and a Father
Sample: “Cancer”
Stage IV NSCLC EGFR+
dx May 2014 at age 41
@BloggerFather
Ruth Rainwater A New Beginning
Sample: “On Death”
Stage IV NSCLC adenocarcinoma
dx October 2013 at age 64
@Ruth_Rainwater
Jessica Rice stage iv: living for each day Stage IV NSCLC ALK+
dx November 2011 at age 30
Arne Steding Echt jetzt? (Blogs in German) Stage IV NSCLC ROS1+
dx October 2012 at age 30
Jennifer Toth My Unexpected Journey
Sample: “A 12 Pack of Eggs and a Dozen Beers”
Stage IIIB NSCLC
dx April 2014 at age 54
@mommatothx7
Leilani Thomas Researcher to Patient Stage IV NSCLC EGFR+
dx July 2016
age 33
@hibiscus_83
Velda The Climb Sometimes the Fall Stage IV NSCLC
dx September 2009

Last updated 6-Apr-2017

One Comment on “Voices Silenced by Lung Cancer

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