#LCSM

#LCSM Chat Topic 2/26 at 8PM ET: Changing the Language of Cancer

Cancer is a gift.
Cancer is a battle.
I’m cancer free.
G-d only gives you what you can handle.
Stay positive.
These are words and phrases often associated with a cancer diagnosis. Are they helpful or not?

Obesity is the new smoking.
Limit alcohol consumption.
Exercise more.
Sit less.
There have been countless media reports about cancer prevention. Good advice, right?

Treatable vs. curable.
‘Good’ cancer vs. ‘bad’ cancer.
5-year survival.
Surgical cure.
These are examples of language that may be heard in doctor’s offices. Are health care providers and patients on the same page?

Join moderator Laronica Conway @louisianagirl91 for #LCSM Chat on Thursday, February 26, at 5 PM PT, 7 PM CT, 8 PM ET, as we discuss the language of cancer, what works, and what can be changed for the better.

T1: What do patients want to hear from friends, family and the general public? What doesn’t help?

T2: What do you think of cancer prevention messages? Good advice, or patient blaming?

T3: How can health care providers and patients/caregivers communicate more clearly with each other?

We look forward to seeing you Thursday 2/26 at 8 PM ET.  Please be sure to include #LCSM in your tweets to participate in the chat.  For more about how to participate, see our #LCSM Chat Primer.

#LCSM Chat Topic 2/12 8PM ET: #IWishMyDoc and #IWishMyPatient

Stacey Tinianov (@coffeemommy) wrote an excellent blogpost titled “Context, Understanding and Empathy: #IWishMyDoc & #IWishMyPatient” on the Flip the Clinic website February 1. Below are excerpts from that post that set the stage for our next LCSM Chat on February 12:

If you could openly offer any suggestion to your physician, what would it be and why?

If you could kindly suggest something that could improve your patient’s time in the clinic or overall health, what would you tell them?

Although whole health and wellness is the goal for both physicians and patients, we occasionally seem disconnected from—or even at odds with—each other. A health care provider’s best intentions can be crushed by time constraints. A patient’s desire to be well can get lost in the mix of misunderstanding.

In an effort to help provide context, improve understanding, generate empathy, and drive a change in behaviors between physician and patient, let’s make these wishes visible. In the month of February, with the hashtags #IWishMyDoc and #IWishMyPatient, we can start a respectful conversation, aimed at bridging the gap between patient and physician, with health, wellness, and shared understanding at the center.

The #LCSM Chat on February 12, 2015, at 8 PM Eastern Time, will support Stacey’s effort by fostering a respectful conversation that aims for shared understanding.  In a change of format for this chat, we will not have formal topics T1, T2, etc.  Instead, your moderator Janet Freeman-Daily (@JFreemanDaily) will post prompts to encourage you to share your wishes using the hashtags below in your tweets in addition to the #LCSM hashtag:

  • #IWishMyDoc
  • #IWishMyPatient
  • #IWishMyNurse
  • #IWishMyHospital
  • #IWishMyInsurer

We’ll introduce ourselves during the first five minutes, then you can tweet any of these hashtags at any time during the one-hour chat.  Please remember to include #LCSM in ALL your tweets so the other chat participants can see them.  You can read a primer on participating in the chat here.

Sample tweets to get you thinking (remember, be respectful – no blaming!):

  • #IWishMyDoc would offer to call me in evening after my scan with results so I won’t worry over a weekend  #LCSM
  • #IWishMyPatient would tell me when they don’t understand a term I’m using so I can clarify it during the visit. #LCSM
  • #IWishMyNurse would send me a follow-up email a few days after an office visit to see if I have questions.  #LCSM
  • #IWishMyHospital would make scan report available online via patient portal after patient and doc discuss it. #LCSM

Stacey will be collating responses collected via Twitter throughout February, and will share the results.  We look forward to seeing you in the chat!

#LCSM Chat Topic 1/29 8PM ET: How Do Patients Decide Where to Seek Cancer Treatment?

Cancer is both a terrible, terrifying disease and big business.  With costs of care rising and delivery of medicine changing, independent private practice groups are increasingly uncommon and sole practitioners are rare.   Cancer care is now becoming consolidated as a system of larger institutions and networks, whether academic or private. And they build business with marketing and a keen eye on competition.

These institutions are targeting market niches with major campaigns. Smaller, local centers may focus on the opportunity to get cancer care close to home. Other centers feature cutting edge care and clinical trials. Still others highlight integrative care and holistic, emotional support.

So … how does a patient choose where to go for treatment?  Are the treatment methods effective?  How do the facility’s results compare to outcomes elsewhere?  How can you determine if the care is as good as the facility claims?

Our upcoming #LCSM tweet chat on Thursday, January 29 at 8PM ET/5PM PT will address what impacts cancer patient decisions about where to receive care. Obviously, different people select all kinds of cancer centers because they prioritize different things. So we’ll turn to questions around marketing cancer care and how important and effective it is. Specifically, moderator Dr. H Jack West will help us explore the following questions during the hour:

T1: What factors are most important in deciding where to seek cancer care? Referring doc? Friends? Marketing? Web ratings?

T2: Do you believe marketing claims about cancer care? What impressed? Disappointed?

T3: Many marketing campaigns are case testimonials. Are personal stories still more effective than stats?

T4: Does access to newest drugs, technology and clinical trials motivate patients to drive >1 hr or get on a plane?

T5: Do most patients make the best choice for their care? Are some misled by bad referrals or inaccurate advertising?

To join, just search for hashtag #LCSM during the hour of the chat and add “#LCSM” to your tweets to add comments (or go to tchat.io and sign in). Hope to see you there!

References

Do Billboards Influence Cancer Decisions?

Is Cancer Hospital Advertising Misleading Patients?
(access requires free registration on Medscape)