#LCSM

#LCSM Chat Topic for 12/17: Reflecting on 2015, Projecting 2016 for the Lung Cancer Community

Some years are bigger than others, and by just about any measure, 2015 was a banner year for the lung cancer community. We saw new drug approvals for a wide range of lung cancer patients, including immunotherapy for patients with both squamous and non-squamous advanced NSCLC, as well as very recent approvals as holiday presents for patients with an EGFR mutation or ALK rearrangement. We saw many important trials in lung cancer become high priorities, a growing use of next generation sequencing to identify new targets, and new data and greater acceptance of plasma testing for mutations as a more accessible means of molecular marker testing.

At the same time we celebrate the advances we’ve made, many of us still feel that the greater promise is for the future, that our successes are only setting the stage for bigger advances. So at the end of every year, it is fitting for us to look back at the key successes but also make predictions and perhaps create a wish list for the coming year.

In that spirit, moderator Dr. Jack West will cover the following provocative questions in our upcoming #LCSM chat on Thursday, 12/17/2015 at 8PM Eastern, 5 PM Pacific:

T1: What do you feel were the key highlights for the lung cancer community in 2015?

T2: What are the leading challenges the lung cancer community still faces for the near future?

T3: What are your predictions for realistic next advances in lung cancer in 2016?

T4: Dreaming big, what’s on your wish list of what you’d love to see for the lung cancer community next year?

New to #LCSM Chat? Check out our chat primer!

Dec17_LCSMchat

 

#LCSM Chat Topic for 12/3: “The Lung Cancer Advocacy Dilemma: Bridging the Smoking History Divide”

The lung cancer community is made up of a very diverse group of people. We come in all shapes, sizes, colors, creeds, and political affiliations. Where else can one sit at the same table with a hunter and a vegan? An atheist and a born-again Christian? A former punk rocker and a politican? The individuals who make up this vibrant community are brought together for one reason: to make things better for people with lung cancer. We are a family of sorts.

As with all families, however, we have subjects that are not comfortably discussed. The lung cancer community is no different. Our family is made up of patients who are never-smokers, former smokers and current smokers. In the minds of the general public, mainstream media and too many healthcare providers, people with lung cancer are the poster children for smoking stigma. How do we address this reality openly and honestly as a community in a way that honors all patients? How do we bridge the divide with respect to smoking history?

These topic questions will guide the conversation:

T1: How do you perceive the divide in the #LungCancer Community between those with smoking histories and never-smokers? #LCSM

T2: Which advocacy messages make the divide worse? #LCSM

T3: How can we heal this divide in the #LungCancer community for the greater good of the advocacy movement? #LCSM

T4: How can we change the general public’s perception of #LungCancer patients without emphasizing never-smokers? #LCSM

We hope you’ll join moderator Deana Hendrickson on Thursday at 5 pm PT, 7 pm CT, 8 pm ET. If you’re new to tweetchats, please read this primer on how to participate in #LCSM Chats.

Please read prior to the chat:

Dear Lung Cancer Patient Who Smoked

Can We Erase Lung Cancer Stigma Without Mentioning Smoking?

Guest Blog: Dear Lung Cancer Patient Who Didn’t Smoke

Profiles in Lung Cancer: Kelli “Cat” Joseph, Survivor 

The Lung Cancer Blame Game – How People Blame the Patients and Patients Blame Themselves 

Are Lung Cancer Patients to Blame for Their Disease?

Let’s Kill the Stigma and Save Lives

David Carr’s death and the stigma of lung cancer

 

 

Profiles in Lung Cancer – Day 30: Jamie Shull

Welcome to the November 30th Edition of Lung Cancer Awareness Month 2015. Trying to understand what is going on in November – read November 1st blog post.

Nancy and Jamie at Hubers 014
nancy-and-jamie-at-hubers-014

I am happy to connect you all with lung cancer advocate Jamie Shull.

Jamie will be quite thrilled when lung cancer is a manageable, chronic disease, that keeps people living and living well.

She feels strongly, “Anyone with lungs can get lung cancer.” That is the message she spreads. Read more on Kim Wieneke’s Blog Aquarius vs Cancer