Posted on November 1, 2015 by Gray Connections
Happy Lung Cancer Awareness Month 2015! As #LCAM15 begins, LCSM is thinking about what actions the lung cancer community should take to improve quality of life and treatment outcomes for lung cancer patients. What would be the best way to “move the needle” on lung cancer? If you could choose the top issues that LCSM stakeholders (patients, caregivers, healthcare providers, researchers, advocates, funders, regulators, and healthcare payers) need to address for lung cancer, what would you choose? Improve LC awareness and dispel stigma Train patients and caregivers to share stories Publicize patient… Read More
Posted on August 23, 2015 by Gray Connections
by guest host Christina Lizaso The internet has obviously changed a lot of things. One of the most exciting and impactful changes for me has been how it enables patients to find each other and form disease communities. It began with discussion boards; now there are an amazing number of options to suit various interests, styles and comfort levels. The rise of online patient communities has been especially important for those with rare disease and diseases which carry stigma. What is really exciting is to see patient communities go beyond internally supporting… Read More
Posted on May 18, 2015 by Gray Connections
Lung cancer patient advocates are beginning to make their voices heard and gain acceptance in the medical world. For the first time ever, patient advocates will be speaking from the stage at the World Conference on Lung Cancer (WCLC), the largest meeting dedicated to lung cancer anywhere. The meeting, which runs September 6-9 in Denver and is sponsored by the International Association for the Study of Lung Cancer (IASLC), will have sessions on research, treatment, biotech developments…and patient advocacy topics. In the session titled “Advocacy in Practice,” #LCSM Comoderator Janet Freeman-Daily will… Read More
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