#LCSM Chat 10/22 at 8PM ET–Sharing Your Story: Talking Points for #LungCancer Advocates

As Lung Cancer Awareness Month (November) grows nearer, patients and advocates become more focused on how to raise awareness of our disease. But what should we say to have the most impact?  What “talking points” and tips do successful advocates use in writing, interviews, and public speaking? The October 22 #LCSM Chat at 8 PM ET (5 PM PT) will discuss the most effective ways to share our patient and caregiver stories as we work to raise awareness of our disease in the media, online, and in person. Although our focus will… Read More

#LCSM Chat 8/27 8pm ET: Let’s get social… in our health?

by guest host Christina Lizaso The internet has obviously changed a lot of things. One of the most exciting and impactful changes for me has been how it enables patients to find each other and form disease communities. It began with discussion boards; now there are an amazing number of options to suit various interests, styles and comfort levels. The rise of online patient communities has been especially important for those with rare disease and diseases which carry stigma. What is really exciting is to see patient communities go beyond internally supporting… Read More

#LCSM chat 8/13 8pm ET: How can we fight the rising cost of cancer care?

Q A July 23 article in Newsweek titled “The High Cost of Cancer Care: Your Money or Your Life?”  emphasizes a topic of increasing concern:  the escalating costs of new cancer drugs, and the toll this takes on patients and families. A presentation at ASCO 2015 titled “Perspectives in Value” graphically showed the escalating price of cancer drugs in recent years, and how those prices soar off the charts for some new immunotherapies. The presentation also showed how prices of targeted therapy drugs don’t seem to go down as more patients use… Read More